From March 16 to March 20 I had daily IVIG infusions at the Cadillac Munson hospital in Cadillac, Michigan. The IV infusion took about 3 1/2 hours each day and involved insertion of an IV, some Tylenol pills and, prior to the IV drug, some benadryl by infusion. The benadryl created some drowsiness and encouraged me to nap during the first hour. After that I read email, rummaged around on Facebook, chatted with the nurses, and dozed off some more. I had no side effects.
By the end of that week, I had noticed some small subtle improvements. In the week that followed, I was no longer digressing as I had before, and my walk was a little bit better. Some pain in my feet was reduced (to level 2 or 3 instead of levels 4 or 5.) This was encouraging!
My condition is still frustrating. I have pain in my feet, especially in the afternoon and evening, and at times it's hard to concentrate. It is still very hard for me to get up from a sitting position. Walking, although done more smoothly, is still painful.
About a week after my infusion I got an email from the Mayo Clinic in Rochester Minnesota inviting me for a visit! In this way, I will be seen by some specialists in this disease, and I am hopeful that this will lead to a constructive regimen for the future.
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